don't be like the rest of them, darling.

Great Strides for Cystic Fibrosis: Join Roman’s team

Great Strides for Cystic Fibrosis: Join Roman’s team

roman111

I was born with Asthma. Throughout my entire life I’ve had struggles with breathing. I’ve been in the hospital a handful of times because of it and certain months of the year are worse than others- right now especially sucks for me. For the past few weeks I’ve felt like I’ve been breathing through a straw. I can’t take deep breaths and have a constant cough. That sounds like it totally sucks, right? Well what if I told you I have it easy? What if I told you that after Roman came into my life I realized that I am extremely blessed to breathe easy at all? What if I told you this little boy had it way worse than I do?

Roman was born with Cystic Fibrosis, to learn what that is or more about it please continue reading. I’ve included a piece of a revised blog post I wrote about him last year….

If you don’t know what Cystic Fibrosis is, you’re not alone. I had never heard of it either, that is, until August 25, 2014.
That was the day I learned that my best friend’s sweet baby boy, Roman, had been diagnosed with this horrible disease.

1959373_10206635203868483_420907553661687382_n

Cystic Fibrosis is a life threatening disease that causes a buildup of mucus in the lungs and other organs, trapping bacteria. This leads to infections, organ damage, limiting and ultimately ending the ability to breathe. This disease is rough. These photos were taken during Roman’s first 14 months of life. Even at this time, he had already been through so much. From sickness after sickness, hospital stays, his breathing treatments that he has to do multiple times a day and having a feeding tube implanted into his little belly- this little guy is a trooper.

IMG_5085IMG_4925IMG_4965This kid is special.
He’s amazing.
Watching this little baby sit calmly while strangers in doctors’ masks poke and prod him with needles is an incredibly humbling sight. He lives with this disease every day, and he’ll live with it until it stops him. That is, if we let it. I have faith that one day there will be a cure, and I have faith that Roman can and will live a long, happy life.
This little boy is not even two and he’s ALREADY one of my biggest inspirations.11921781_10207562424568421_2325264138321510203_n

This music video from One Republic gives a glimpse into one young man’s life and what he goes through living with CF. It’s absolutely worth watching.

May is Cystic Fibrosis Awareness Month, and this month we’re raising awareness and funds for the Cystic Fibrosis Foundation with the Great Strides walk. It takes place on May 21 in Salt Lake City. Click HERE to register, make a donation and come join us! If you physically can’t make it, you can register to be a virtual walker. Donations are GREATLY appreciated (if you donate $20 you get a free t-shirt for the walk), but it doesn’t cost you a thing to participate. Just your time.

To learn more about Cystic Fibrosis and how you can help, visit http://www.cff.org.
Come join us and help make strides towards changing little Roman’s and many other’s lives. <3
IMG_8549



Leave a Reply